|Urge your Representative to KNOW Lupus
The Lupus Foundation of America recently hosted a briefing on Capitol Hill urging Congressional staff to KNOW LUPUS. Contact your Representative today and encourage them to join the Congressional Lupus Caucus. The Caucus was founded with the primary purpose of ensuring all members of Congress are armed with the understanding of the impact of lupus and actively support advancement of lupus research and increased awareness of the disease among the public and health professionals.
Research shows that nearly two-thirds of the public knows little or nothing about lupus beyond the name. And despite the widespread prevalence of lupus, medical research has remained underfunded relative to its scope and devastation.
Please take a moment to email to your Representative TODAY urging them to join the Congressional Lupus Caucus and KNOW LUPUS in order to create a future with NO LUPUS. You can visit the Caucus web site to learn more.
The future of lupus drug development is strong, and the Lupus Foundation of America is a leader in advocating for legislation to ensure that once new treatments for lupus are available, people with lupus have meaningful access to these vital treatments without experiencing burdensome out-of-pocket costs.
Now is the time to take action! Representatives David McKinley (R-WV) and Lois Capps (D-CA) have introduced the Patients’ Access to Treatments Act (H.R. 1600), a bill that would limit cost-sharing requirements for treatments placed on a specialty tier and charged a co-insurance (a percentage the cost of a drug).
The bill had 142 bi-partisan co-sponsors last year, and we need your help getting original cosponsors before the legislation is reintroduced! Write your Representative today urging them to co-sponsor the Patients’ Access to Treatments Act. This important legislation will help reduce the financial burden on people who rely on highly specialized medications for maintaining and improving their health. Take action today
As I told the story of my journey with Lupus, I discovered I was telling parts of so many others stories. For those that are afraid of telling their story, they find themselves looped into ours. No matter how different we are, Lupus has looped us together. Keep telling Our stories!
Be Encouraged…Be Blessed…Be Enriched…Be Authentically You!