|Urge your Representative to KNOW Lupus
The Lupus Foundation of America recently hosted a briefing on Capitol Hill urging Congressional staff to KNOW LUPUS. Contact your Representative today and encourage them to join the Congressional Lupus Caucus. The Caucus was founded with the primary purpose of ensuring all members of Congress are armed with the understanding of the impact of lupus and actively support advancement of lupus research and increased awareness of the disease among the public and health professionals.
Research shows that nearly two-thirds of the public knows little or nothing about lupus beyond the name. And despite the widespread prevalence of lupus, medical research has remained underfunded relative to its scope and devastation.
Please take a moment to email to your Representative TODAY urging them to join the Congressional Lupus Caucus and KNOW LUPUS in order to create a future with NO LUPUS. You can visit the Caucus web site to learn more.
The future of lupus drug development is strong, and the Lupus Foundation of America is a leader in advocating for legislation to ensure that once new treatments for lupus are available, people with lupus have meaningful access to these vital treatments without experiencing burdensome out-of-pocket costs.
Now is the time to take action! Representatives David McKinley (R-WV) and Lois Capps (D-CA) have introduced the Patients’ Access to Treatments Act (H.R. 1600), a bill that would limit cost-sharing requirements for treatments placed on a specialty tier and charged a co-insurance (a percentage the cost of a drug).
The bill had 142 bi-partisan co-sponsors last year, and we need your help getting original cosponsors before the legislation is reintroduced! Write your Representative today urging them to co-sponsor the Patients’ Access to Treatments Act. This important legislation will help reduce the financial burden on people who rely on highly specialized medications for maintaining and improving their health. Take action today
As I told the story of my journey with Lupus, I discovered I was telling parts of so many others stories. For those that are afraid of telling their story, they find themselves looped into ours. No matter how different we are, Lupus has looped us together. Keep telling Our stories!
Be Encouraged…Be Blessed…Be Enriched…Be Authentically You!
You have made it through the tumultuous times of yesterday. That is proof you are strong and resilient. Your scars are the stories of the triumphant battles you made it through; you survived. Your tears are the lyrics to your soul’s song. Never be ashamed of their flow. Lyrics so complex only the Divine’s ear can interpret. God is listening ever so intently to the melody of every well, roll, drip and drop. Take peace and have solace in knowing that you are an over-comer; you’re never alone and there is a greater plan which includes you. Your life is invaluable…Never be ashamed of its opus!
Be Encouraged…Be Blessed…Be Enriched…Be Authentically You!
Someone You Know Has Lupus…Me!
What is lupus?
Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years.
In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs (“foreign invaders,” like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues (“auto” means “self”) and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body.
Lupus is also a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better).
These are some additional facts about lupus that you should know:
- Lupus is not contagious, not even through sexual contact. You cannot “catch” lupus from someone or “give” lupus to someone.
- Lupus is not like or related to cancer. Cancer is a condition of malignant, abnormal tissues that grow rapidly and spread into surrounding tissues. Lupus is an autoimmune disease, as described above.
- Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). In HIV or AIDS the immune system is underactive; in lupus, the immune system is overactive.
- Lupus can range from mild to life-threatening and should always be treated by a doctor. With good medical care, most people with lupus can lead a full life.
- Our research estimates that at least 1.5 million Americans have lupus. The actual number may be higher; however, there have been no large-scale studies to show the actual number of people in the U.S. living with lupus.
- More than 16,000 new cases of lupus are reported annually across the country.
- It is believed that 5 million people throughout the world have a form of lupus.
- Lupus strikes mostly women of childbearing age (15-44). However, men, children, and teenagers develop lupus, too. Most people will develop lupus between the ages of 15-44.
- Women of color are two to three times more likely to develop lupus than Caucasians.
- People of all races and ethnic groups can develop lupus.
The Jonah complex is the fear of success which prevents self-actualization, or the realization of one’s potential. It is the fear of one’s own greatness, the evasion of one’s destiny, or the avoidance of exercising one’s talents. Just as the fear of achieving a personal worst can motivate personal growth, the fear of achieving a personal best can also hinder achievement.
Maslow states, “So often we run away from the responsibilities dictated (or rather suggested) by nature, by fate, even sometimes by accident, just as Jonah tried—in vain—to run away from his fate”.
What fears are hindering you?
Atelophobia- Fear of imperfection or not being good enough.
Athazagoraphobia- Fear of being forgotten or ignored.
Atychiphobia- Fear of failure.
Autophobia- Fear of being oneself.
Catagelophobia- Fear of being ridiculed.
Cenophobia or Centophobia- Fear of new things or ideas.
Cherophobia-Fear of gaiety, happiness, joyfulness, rejoicing
Decidophobia- Fear of making decisions.
Doxophobia- Fear of receiving praise.
Eleutherophobia- Fear of freedom.
Ergasiophobia- Fear of work or functioning.
Euphobia- Fear of hearing good news.
Geliophobia- Fear of laughter.
Gelotophobia- Fear of being laughed at.
Hypengyophobia or Hypegiaphobia- Fear of responsibility.
Metathesiophobia- Fear of changes.
Prosophobia- Fear of progress.
Rhabdophobia- Fear of being criticized.
No fear is too great for you to overcome. Within you lies the power to conquer them all. If you change your thoughts, your feeling and results will ultimately change too. The person who thinks he is able is able. Conquer your thoughts and you’ll conquer your fears.
B. Alan Bourgeois
Texas Association of Authors
512/554-9560 or firstname.lastname@example.org
Hunny Child Books
830/899-5541 or email@example.com
Texas Association of Authors Seeks to Support Texas Authors and State Literacy with “Drop Everything and Read Texas Day”
AUSTIN, TEXAS —The Texas Association of Authors has dubbed April 12 as “Drop Everything and Read (DEAR) Texas Day,” created to encourage readers of all ages to enjoy a book by a Texas author. The day will be marked with a statewide event in which more than 80 Texas-based authors will participate in readings and signings at 30 bookstores across the state, including selected Barnes & Noble and Half Price Books locations as well as independent bookstores.
Texas dignitaries will kick off events at the Texas State Capitol at noon on April 11 with an award ceremony for this year’s winners of the TxAuthors.com Book Awards.
The initiative has gained support from city governments and businesses alike. Round Rock Mayor Alan McGraw and Austin Mayor Steve Adler have proclaimed April 12 as DEAR Texas Day. Also among its supporters, Joe’s Crab Shack has joined Barnes & Noble in offering customers a donation voucher, which directs a portion of proceeds from net sales to support DEAR Texas events and children’s literacy programs.
“We have three goals for DEAR Texas,” said B. Alan Bourgeois, Founder and Director of the Texas Association of Authors. “Our first goal is to encourage people of all ages to read more because we as a society are losing readers to TV and electronics. Second, we need to give readers an opportunity to meet a fellow Texan that has written a book, and give authors an opportunity to introduce their book to people they may have not had a chance to reach before. Third, with the money raised from the Barnes & Noble and Joe’s Crab Shack vouchers, we will be able to work with other literacy programs in Texas and bring more books and authors to schools, libraries and events, thus helping everyone grow.”
For more information, including a complete list of participating bookstores and authors, please visit DearTexas.info.
About the Texas Association of Authors:
The Texas Association of Authors promotes the works of Texas authors. The only organization of its kind in the country, Texas Authors leverages the knowledge and expertise of many different authors to help promote others within the world of reading and writing.
Originally created by HarperCollins, the DEAR program has taken place nationwide on April 12 in honor of young adult and children’s book author Beverly Cleary’s birthday.
DEAR Texas Day
Events in Austin and the Surrounding Area
Texas authors will be appearing at various bookstores in Austin and the surrounding area on April 12. Authors will read from their books and will be available to autograph books purchased at the event.
613 W. 29th St. Austin, TX 78705
1 p.m. to 6 p.m.
Art Anthony, author of “Return to Sulphur River”
J.C. Hulsey, author of “The Traveler Series”
Jeffery A. Mays, author of “The Former Hero”
David Alkek, author of “The Doorway”
Jan Sikes, author of “Convict and the Rose”
Andrea Stahle, author of “Gods of Arcadia”
R.C. Knipstein, author of “Paradise Forbidden”
Kimberly E. M. Beasley, author of “Revelations of my Heart”
Maryann Miller, author of “Doubletake”
Mary B. Stafford, author of “A Wasp in a Fig Tree”
Barnes & Noble – Arboretum
10000 Research Blvd.
Ste. 158 Austin, TX 78759
11 a.m. to 7 p.m.
David Hughes, author of “Melted Clowns” and “The Epiphany of Joy”
Kathleen Shields, author of “Hamilton Troll Series”
Andrea Boltwood, author of “The Clown Who Came Down with a Frown”
Debra Winegarten, author of “Oveta Culp Hobby”
R.L. Nolen, author of “Deadly Thyme”
Rob Wood, author of “Let’s Scare Mom”
Elizabeth Garcia, author of “Border Ghosts”
Joanne Fox Phillips, author of “Revenge of the Cube Dweller”
Art Costello, author of “Expectation Therapy”
Cindy B. Wright, author of “Reel Transformation”
R.W. Jaeger, author of “Next Stop Heaven”
Justine San Filippo, author of “Lose Your Inches without Losing Your Mind!”
Aralyn Hughes, editor of “Kid Me Not”
Diana Finfrock-Farrar, author of “The Door of the Heart”
Roger Leslie, author of “My First Last Year”
Barnes & Noble – Sunset Valley Village
5601 Brodie Ln.
Austin, TX 78745
1 p.m. to 3 p.m.
Jackie Smith, PhD., author of “Once More with Feeling”
Barnes & Noble – La Frontera Village
2701 Parker Rd.
Bldg. A, Ste. 700
Round Rock, TX 78681
Anna Church, author of the children’s series “Hug-A-Bug”
Jedha Mayberry, author of the award-winning “The Unheralded King of Preston Plains Middle”
Half Price Books – South Lamar/The Corners
2929 S. Lamar Blvd.
Austin, TX 78704
Noon to 5:30 p.m.
Howie Richey, author of “Party Weird: Festivals and Fringe Happenings of Austin”
Lillian Hunter, award-winning author of “Sam Solves a Problem” and “What If I Had Taken the Road Not Traveled”
Half Price Books – North Lamar
5555 N. Lamar Blvd.
Austin, TX 78751
1 p.m. to 4 p.m.
Mitchel Street, author of “Prophase”
Arlene Gale, author of “Face Forward Move Forward”
Linda Baten Johnson, author of “Mystery at Desolation Point”
Half Price Books – Boardwalk
2601 S. I-35
Round Rock, TX 78664
Myra MclIvain, award-winning author of “Stein House” and “Legacy”
NEW RELEASE AVAILABLE NOW!
“Precarius” Latin for “Pray”
“do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.” (Philippians 4:6 ESV)
There is nothing more common and complex among people; no other practice more mysterious and misconstrued than prayer. The ancient art of prayer has been practiced in seemingly every culture, on every continent throughout all civilizations. Of course there are skeptics and antagonists who believe that praying by no means impact human experience or the course of life. It’s merely human delusion and a fanatical religious ritual.
As children we are taught to say certain prayers but never thoroughly explained why. We merely repeat what our parents tell us, commit it to memory and recite them each time we’re told to say our prayers.
No matter what we question about prayer, it somehow works. Many will still find themselves fixated on the queries regarding prayer and it is this challenge we will embrace as we explore the “Who, What, When, Where, Why and How” questions about prayer.